Knowing now…

It changed my perspective on the world. Reading that horrible book.

My reaction, the twitter threads, my review

Not only in the obvious way, in that I still feel like I waded through sewage to read it, and can’t quite get the stink off my soul.

But also in finding out how deeply caring the #actuallyautistic community is.

I sort of knew that, I mean, I’ve never met a more empathic group of people than autistics, (most of them, there’s bad apples everywhere, but by and large, autistics are wonderful people) but I’ve never been deeply involved in the community. Mostly because I only got my DX a couple of years ago.

I post on the #actuallyautistic hashtag when I remember to, but I’m ridiculously busy.

It feels like all of my time is taken up by being a mom of two, a spouse, a writer, an editor, a sensitivity reader, a reviewer, and a critique partner to several other authors as well as trying to be a good friend to the people I’m close to.

So the outpouring of appreciation and love from the autistic community and our allies has just amazed me.

I didn’t expect it.

I’m so grateful for it, because after reading that book? I really needed it.

Thank you, all of you, so much.

The faith I lost in a lot of NT people has been replaced by faith in all of us. Together, I really do think we can make our voices heard.

And for the sake of future generations of autistics, I think we have to.

I’ve been contacted privately by dozens of NTs who really do want to learn to do better.

So no. As tired as I am, I’m not shutting up and I’m not backing down.

It takes a lot to make me angry, long, long fuse, but I’m both angry and determined now.

My kids, all autistic kids, all autistics… we all deserve a better world than the one that lauds a book like To Siri with Love.

I have no idea how we’ll make that happen, but I think if we stand together, and we don’t let ourselves get too exhausted by it all, we can do it.

So, in all of this, do remember to take care of yourselves. I know the emotions are strong, they really, really, are, but this is a marathon, not a sprint.

Remember to rest, and care for yourselves.

Kae-

 

A reaction to reading TO SIRI WITH LOVE from an #actuallyautistic author.

You know. I started reading that horrific book as a bit of a whim, thinking it wouldn’t be that bad.

I’m the autistic mom of autistic kids, my husband is autistic, we value and appreciate our children and ourselves in pretty much every particular. Are there challenges? Absolutely. But they aren’t anything that neurotypicals don’t deal with, we just deal with them differently.

Usually by communication. We use text a lot with each other, because a lot of times it’s far easier to type or sign than it is to talk.

The point isn’t how we use adaptive technology to make our lives run smoothly, the point is that we communicate.

So I honestly, to the soul of me, didn’t understand how a mother could write and publish a book that would be anything except a joyful celebration of her child’s uniqueness.

I had hoped, foolishly, I guess, that the screenshots of the book I’d seen before reading it had somehow been… not so much taken out of context, but perhaps were just… I don’t even know, overblown maybe?

I didn’t understand how a mother could think those things about her brilliant child.

And never for a moment did I think, reading about Gus, that he’s anything less than brilliant.

He’s so smart I have a feeling he’s manipulating his mom because of how she so very clearly infantilizes him and shows overweening favoritism to his twin Henry, who is also autistic.

Though obviously, neither the author nor Henry know this. Henry shows all the markers of autism, he just presents differently.

We ALL present differently. Which is part of why autism is so hard for most people to recognize when they see it, and that absolutely includes so-called professionals (most of whom are neurotypical) in the field of diagnosis.

It’s a common reaction for autistics when we are abused by ABA practices (to learn to manipulate) especially if ABA therapies are impinged upon us by parents who believe the revolting bullshit that Auti$m $peaks tends to tout.

We learn to do everything in our power to protect ourselves, because we don’t have any choice.

This author… the things she does to both of her sons. It’s utterly appalling.

I can’t, even still, after reading that atrocity… I still can’t believe that a mother could write those things about her kids!

I can’t believe she’d share such personal things about her KNOWN autistic son, without his permission.

Without his knowledge.

Medical information, daydreams about having a ‘normal’ Gus… I just…

Reading that book broke something in me. It really did. It broke a faith I had that neurotypical society didn’t really hate me and the way I’m made.

And a couple of days after reading it and posting my review, I’m still shaken by it. I’m recovering, but it’ll take a week or more to regain my emotional equilibrium.

The outpouring of love and support I’ve received from the autistic community and a large number of neurotypical people have restored my faith in most of humanity.

“Autism parents”, however? They’re on my shit-list for life.

You can read my full review here, with links to the live-tweet threads I did as I broke it down, chapter by chapter.

If you want to know about the experience of being autistic, the hashtags #actuallyautistic and #askanautistic are far better resources than pretty much anything else I can think of.